Nikki is from Hartlepool, where she lives with her husband John, who has Huntington’s disease, and four children.

With the help of her children, Shayne and Chloe, Nikki talks about the emotional toll living with Huntington’s has taken and her worries about the future for her and her children.

To learn more about the realities of caring for a loved one with Huntington's and to explore the impact of the condition on everybody within the family, please visit our Family Matters campaign website here: http://hdfamilymatters.com/

Please do get in touch with the Huntington's Disease Association (HDA) if this film has raised difficult issues for you and you feel you need to speak to somebody or if you want to help raise awareness for Huntington’s in England and Wales. The HDA (part of the Huntington’s Disease Alliance UK and Ireland) does amazing work to promote awareness of Huntington’s disease and improve support for families. Find out more here: https://www.hda.org.uk/