CheckRare
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8:20
Fibrodysplasia Ossificans Progressiva: Overview and Advocacy
CheckRare
63 views • 3 days ago
5:18
Imperfect JOY: Capturing the Lives of Patients With Rare Diseases
CheckRare
14 views • 3 days ago
10:45
The Cushing's Support and Research Foundation
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8 views • 3 days ago
14:46
The Diagnostic Journey of Cushing's Patients
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22 views • 3 days ago
8:22
Raising Awareness for Fibrodysplasia Ossificans Progressiva
CheckRare
20 views • 3 days ago
5:14
Being an Advocate for Yourself and Others
CheckRare
40 views • 3 days ago
6:31
Fulfilling the Unmet Needs of Sarcoidosis Patients
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4 views • 3 days ago
16:45
Lenmeldy For Metachromatic Leukodystrophy (MLD): Challenges of Gaining RUSP Approval
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10 views • 3 days ago
5:39
Challenges of the FDA in Regards to Rare Diseases
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13 views • 4 days ago
7:53
Gene Therapy for Metachromatic Leukodystrophy (MLD): Addressing the Cost Issue
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54 views • 4 days ago
13:48
Expanded Access Programs and Barth Syndrome Drug Candidate
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46 views • 4 days ago
10:52
Addressing Mental Health in Patients with Rare Diseases
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21 views • 4 days ago
10:09
Addressing Unmet Needs in Rare Diseases
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37 views • 5 days ago
9:47
Undiagnosed Diseases Network Foundation: Providing Resources and Support for Undiagnosed Community
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65 views • 9 days ago
4:22
Tin Soldiers Global: Patient Finding Organization For Fibrodysplasia Ossificans Progressiva
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100 views • 9 days ago
16:24
Clinical Trials for ENPP1 and ABCC6 Deficiency
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101 views • 10 days ago
13:44
Efficacy of AMO-02 (tideglusib) in Myotonic Dystrophy Type 1 (DM1)
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98 views • 12 days ago
6:44
Efficacy of Austedo (deutetrabenazine) For Treating Huntington's Disease
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32 views • 2 weeks ago
8:29
Myasthenia Gravis: Current and Emerging Treatment Options
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116 views • 2 weeks ago
6:07
Overview of Tethered Spinal Cord
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136 views • 2 weeks ago
13:13
AFFINITY Clinical Trial For Duchenne Muscular Dystrophy
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85 views • 3 weeks ago
9:45
ENPP1 and ABCC6 Deficiency Overviews
CheckRare
27 views • 3 weeks ago
8:47
The Connection Between Gaucher Disease and Parkinson's
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144 views • 1 month ago
12:10
Nipocalimab For Myasthenia Gravis and Other Autoantibody Diseases
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267 views • 1 month ago
10:03
Trofinetide and the DAFFODIL Clinical Trial For Rett Syndrome
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119 views • 1 month ago
4:38
Management and Obstacles of Rett Syndrome Patients
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93 views • 1 month ago
8:51
History of Rett Syndrome
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100 views • 1 month ago
10:24
The Changing Treatment Landscape of Pulmonary Arterial Hypertension
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174 views • 1 month ago
5:01
ALS Conversations and Ongoing Platform Trial
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99 views • 1 month ago
12:39
Pridopidine Clinical Trials For ALS and Huntington Disease
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200 views • 1 month ago
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